A Life of Chronic Pain (from the outside looking in)…
March 4th, 2011I met the love of my life about 30 years ago…he was just 16 years old, but an old soul having survived a near-death experience and the alcoholism of his father…and being the youngest of 5 brothers and 1 sister had all matured him beyond his years. What initially drew me to him was his quick wit which relieved the angst I was going through in my personal life. I was often accused of being “too serious” but that summer, participating in the production of the musical “Irene” as a member of the chorus, I felt a lifting of my spirit around this boy and we became friends.
We had our first date on Sean’s 17th birthday, and near the end of the evening, he gave me a poem he’d written me that hinted that what he felt for me was perhaps more than friendship. I was somewhat blown away initially because of the difference in our ages, but at the same time I was captivated by his passion. Early on, Sean showed me the meaning of true love and he’s been at my side ever since.
We shared the most intimate details of our lives with one another that our first summer together and we found a solace in sharing our life’s trials, and wept healing tears after which we laughed and loved.
I learned that Sean had been in a serious accident at the age of 13, when he was riding his bike on a country road (going home from his last day of school – 8th grade) and was struck by a car traveling approximately 70 miles an hour. His body was broken and scarred in so many places that it was a miracle that he survived. The doctors gave him a 50/50 chance of surviving, and he made it. Strike one (severe trauma)!
Sean’s mother suffered from rheumatoid arthritis. I can remember visiting her and she would be sitting and rubbing both of her knees, sort of rocking back and forth while we talked. She’d say her “Arthur” was back….arthritis. She eventually had knee replacement surgery. Sean’s sister Cheryl and oldest brother Mike also suffer from rheumatoid arthritis. Strike two (genetics)!
20 years in the military and many physical and mental mishaps impacted Sean, including but not limited to: a training exercise at a pool where the equipment did not work correctly and Sean’s neck was hit, several long marches while attached with the Marines including one where he marched many miles with a broken ankle, an accident where a heavy weight fell on his neck, and what I feel is the most serious….the impact of his 7 months in the first Persian Gulf War where he was part of a minesweeping mission in the Gulf near the oil well fires. His ship The Tripoli hit a mine in the water and the ventilation system had to be shut down for some time. Sean, as a corpsman, treated many of the sailors onboard and some were covered in paint…fumes he ingested. Strike 3!
Over the past few years, Sean’s neck and back pain have become chronic. In 2009, he had to have hip replacement as his right hip joint was badly deteriorated. Prior to that, he had surgery on one of his knees, not replacement but sort of a resurfacing. In addition, he suffers from photophobia (light sensitivity), migraine headaches, insomnia, needs a CPAP to correct his snoring, weight issues, radiating pain down his arm, pain and swelling in his hands and feet, knee pain, hip and leg pain, nightmares, PTSD, depression, anxiety, occasional dizziness and nausea….
Chronic pain dictates his life and mine. It’s crowded out many of the friends and activities that we used to find enjoyable. Now, it’s about getting through the day, hour to hour and then trying to find a comfortable place to begin to relax enough in the evening to recuperate and perhaps get the necessary sleep to struggle through another 8 hours the next day…and the next, until the weekend. Like others who suffer from chronic pain, Sean’s been to numerous specialists looking for answers and many have told him that “you will have to learn to deal with this”. We have not given up in our search for answers and new ways of coping with the pain.
We recently were given some optimism through Sean’s rheumatologist…..Sean finally had a doctor who listened to him and could provide many possible methods of dealing with his illness and chronic pain. Even so, it takes time for the medications to have an effect and surely some irreparable damage has been done.
I want to rage against the injustice of this devastating disease. My dearest love is 46 years old but living the life of an old man. He deserves so much more. We continue to seek answers. I’m currently researching diet: whole foods, anti-inflammatory diet, and the Vitamin D phenomena. Sean’s been researching the benefits of tai chi, tubs and therapeutic mattresses.
Some things we have found beneficial are: massage, herbal rubs, epsom salt baths, swimming/water aerobics, gentle stretching, laughter, listening and valuing one another’s concerns and providing positive feedback, our favorite date night at a nearby Japanese restaurant where we enjoy nutritious food and steaming cupsful of coconut chai tea and each other’s company.
I just read “The Chronic Pain Puzzle” a feature article in Woman’s Day (Apr 2011) which I highly recommend to anyone dealing with chronic pain or who has an interest in learning more about it. This is an epidemic and millions are seeking answers. The medical community must become more educated on this issue.
Tags: chronic pain, dealing with pain, how to cope with pain, relationships










